Historically overlooked due to misconceptions that these conditions primarily affect men, women with haemophilia, von Willebrand Disease (VWD), and extremely rare bleeding disorders often experience delayed diagnosis, inadequate treatment, and limited research focused on their specific needs.

On 25 March 2025, the EHC held a Round Table discussion titled Advancing Women’s Health – The Importance of Early Diagnosis for Women with Bleeding Disorders at the European Parliament in Brussels. Hosted by MEP Stine Bosse (Renew, Denmark), this event focused on embedding women’s health into  European Union (EU) policy and addressing the ongoing challenges in diagnosis, treatment, and access to care for women with bleeding disorders.

The Executive Summary of this EHC Round Table is now available. Read it here.

Building on the discussions and momentum from this event, on World Health Day, the EHC releases a new position paper urging policymakers to address the unique challenges faced by women with bleeding disorders.

The paper highlights key recommendations for the European Union, including:

• Improving access to care by reducing disparities and ensuring all women, regardless of location or background, receive timely diagnosis and treatment.
• Boosting research efforts to better understand how bleeding disorders manifest in women and develop tailored therapies.
• Strengthening early diagnosis programmes to prevent complications and ensure timely interventions.
• Promoting multidisciplinary care by integrating haematologists, gynaecologists, and other specialists in comprehensive treatment approaches.
• Enhancing data collection across Europe to inform policy, improve healthcare access, and advance scientific research.

The EHC calls on EU policymakers to prioritise women’s health in ongoing healthcare reforms, including the revision of pharmaceutical legislation and the EU Critical Medicines Act. By embedding gender-specific considerations in health policies, the EU can ensure equitable care for all patients, regardless of gender.