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45th National Congress of the French Haemophilia Association
AFH Congress 2018: Innovating for a better future Interview with Olivia Romero-Lux, member of the French Haemophilia Association (AFH) and EHC Steering Committee, by Raia Mihaylova, EHC Communications Officer Innovations or revolution? That...
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2018 World Federation of Hemophilia Congress – Part II
Dr Alison Dougall, dentist and member of the EHC Medical and Scientific Advisory Group is back as guest interviewer for EHC NOW! This week she chats with Dr Beatrice Nolan, paediatric haematologist from Dublin,...
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2018 World Federation of Hemophilia Congress – Part I
Ageing and haemophilia, women and bleeding disorders, sexuality and intimacy…get the highlights of the 2018 WFH Congress from EHC CEO Amanda Bok, EHC MASAG member, dentist Alison Dougall, and Senior Vice-President of the WFH...
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2018 European Conference on Rare Diseases and Orphan Products
EHC NOW! Key highlights and concepts from the 2018 European Conference on Rare Diseases and Orphan Products (ECRD 2018) as seen by EHC President Brian O’Mahony, EHC CEO Amanda Bok and EHC Steering Committee...
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Call for EHC Youth Committee 2018-2020 Candidates
The EHC is currently looking for three youth candidates and an advisor to sit on its Youth Committee for the next three years (2018-2020) to support the development of the EHC Youth Leadership Workshop and other...
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European Principles of Inhibitor Management
The European Principles of Inhibitor Management By Paul Giangrande, EHC Medical Advisory Board Chair and lead author of the European Principles of Inhibitor Management The European Haemophilia Consortium (EHC) and the European Association for...
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European Principles of Inhibitor Management have been published
In spite of recent major advances in the understanding and treatment of inhibitor development in patients with haemophilia, multidisciplinary management of many of these patients remains suboptimal and highly heterogenous across Europe. Following a...
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Haemophilia Care in Europe 2018 Survey
Dear NMOs, Every three years since 2009, the EHC has carried out ‘Haemophilia Care in Europe’ surveys in order to determine the level of haemophilia treatment and care in countries across Europe, as well...
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EHC Youth Leadership Workshop 2018
Experience the memories, energy, discussions and ideas of the participants of the 5th annual EHC Youth Leadership Workshop!