EHC Youth Leadership Workshop 2018
Experience the memories, energy, discussions and ideas of the participants of the 5th annual EHC Youth Leadership Workshop!
Experience the memories, energy, discussions and ideas of the participants of the 5th annual EHC Youth Leadership Workshop!
Inhibitors in their ENTIREty: presenting the European Network on Inhibitor Research Group By Raia Mihaylova, EHC Communications Officer When speaking of novel haemophilia agents, there is a re-occurring phrase often used to...
Bold, determined and taking action. We introduce to you the remaining members of the EHC Women and Bleeding Disorders Committee – Tatjana Markovic (Serbia), Naja Skouw-Rasmussen (Denmark) and Ana Pastor (Portugal). Ulla Hakkarainen (Finland)...
Meet some of the inspiring members (Yannick, Evelyn, Marion and Rose) of the EHC Women and Bleeding Disorders Committee and hear what key challenges they plan to address! In part II, we introduce you...
Read highlights from the EHC Round Table on ‘Economics and Access, Health Care Systems and Novel Therapies’ here.
In 2016, our General Assembly voted to hold the 2018 EHC Conference in Baku, Azerbaijan, in partnership with our Azeri National Member Organisation (NMO). While we are delighted to continue partnering with our Azeri...
Meet the Members of the European Parliament (MEPs) Rare Bleeding Disorder Group and hear what they hope to accomplish for the haemophilia community on a European level! We thank them for their continuous support...
What are the recent successes and challenges in gene therapy for haemophilia and Von Willebrand Disease? Watch an interview with Elena Barbon, a PostDoc researcher at Genethon, who shares her knowledge on this exciting...
With this material, we invite you to explore the world of Genethon, a leading laboratory in designing gene therapies for rare diseases. EHC staff attended a three day training there to learn about the...
Can we forget about HCV in haemophilia? Intracranial haemorrhage, women and bleeding disorders, the economics of novel haemophilia treatment – learn about key highlights from the 2018 EAHAD Congress! EHC PARTNERS Programme coordinator Declan...