Haemophilia is often perceived as a condition that only affects men, and this outdated view continues to affect care, diagnosis, and understanding of the condition in women. To challenge this bias and raise awareness, the EHC is releasing two new resources on World Haemophilia Day 2025.

Building on the discussions and momentum from the latest EHC Round Table on Advancing Women’s Health, on World Health Day, the EHC releases a new position paper urging policymakers to address the unique challenges faced by women with bleeding disorders.

Several days ago, the EHC received a statement from Novo Nordisk concerning manufacturing issues related to NovoSeven, NovoEight, and Esperoct.

On 25 March 2025, the EHC held a Round Table discussion titled ‘Advancing Women’s Health – The Importance of Early Diagnosis for Women with Bleeding Disorders’ at the European Parliament in Brussels, hosted by MEP Stine Bosse.

On World Oral Health Day, the EHC teams up with Professor Alison Dougall to emphasise the importance of good oral hygiene as a key step in preventing complex and invasive dental procedures for people with bleeding disorders.

The European Commission unveiled the Critical Medicines Act aimed at strengthening the resilience of Europe’s pharmaceutical supply chains and ensuring equitable access to essential medicines. The EHC believes it is essential that the voices of patients with rare diseases are heard.