This event brings together EHC members and healthcare professionals working closely with the EHC to provide them with an update on medical advancements in rare bleeding disorders.
With novel products planned to be distributed on the European market in the future, this conference will look in more detail at the technology behind these new products as well as strategies to ensure patient access, notably to ensure that these products are economically viable.
Therefore, the key objectives of this workshop are to:
- Provide participants with a more technical understanding of the different new technologies coming to the market;
- Equip representatives of patient organisations and others with the appropriate advocacy tools to gain improved access to these new technologies.
This Workshop is exclusively open to EHC Members. Places are limited to two per NMO, and registrations will be done on a first-come, first-served basis until we reach Workshop’s capacity.
EHC will cover registration, travel (in economy fare), and accommodation (at the Workshop’s hotel) costs to this workshop for participants nominated by EHC NMOs.
NMOs nominate their participants and register them via the registration form provided to them by direct email. The EHC cordially invites NMOs to nominate one doctor and one patient representative to participate in this conference. In order to ensure the success of this workshop, please ensure to nominate a patient representative who is (or will be) actively involved in the selection of treatment products for your country.
Participants register and book accommodation. Once registered, participants will receive further instructions regarding travel allowances and other details. The event venue is the GLO Hotel Art in Helsinki, Finland.
