The EHC will host its next Round Table on “Current Issues in von Willebrand Disease” on Tuesday, September 10, 2024, from 13:00 until 16:30 CEST in Brussels, Belgium, at the Warwick Hotel.
The event will be co-chaired by Miguel Crato, EHC President, and Dr Maria Elisa Mancuso, chair of the EHC Medical Advisory Group.
| What |
EHC Round Table on Current Issues in von Willebrand Disease |
| When | 10 September 2024, 13:00 – 16:30 CEST |
| Where | Warwick Hotel, Rue Duquesnoy 5, 1000 Brussels, Belgium |
| Programme | Provisional agenda available here. |
| Travel Grants | As a new initiative this year, the EHC is piloting a small grant programme to help a wider group of EHC National Member Organisations access and benefit from EHC Round Tables in Brussels.
The EHC will cover the travel costs up to €300 for up to 5 NMO representatives per Round Table. The deadline for requesting this grant is 8 July 2024, close of business. The EHC will approve up to five requests per Round Table based on the following criteria:
Please note: the EHC won’t cover accommodations in Brussels. Please also note: if an EHC NMO member confirms attendance but does not attend, the EHC won’t fund the travel grant. Hence, taking a travel insurance is highly recommended. |
| Registration | Please register here.
Please note: given that the seats are limited to 50, submission of the registration form does not guarantee a place at the Round Table. Registrations will be reviewed, and successful applicants will be contacted by the EHC to confirm their participation. We appreciate your understanding and look forward to considering your application. |
| EHC Staff Contact Person | Zita Gacser, EHC Behavioural Change Lead, at zita.gacser[at]ehc.eu |
Jim is aged 66 and has Haemophilia A with a high titer inhibitor which he developed at age 14.
Maria Elisa Mancuso (MD, PhD) is a Haematologist and works as a Senior Haematology Consultant at the Center for Thrombosis and Haemorrhagic Diseases of IRCCS Humanitas Research Hospital in Rozzano, Milan, Italy. She is Adjunct Clinical Professor at Humanitas University. She obtained a post-degree in Clinical and Experimental Haematology and a PhD in Clinical Methodology. She is involved in clinical research and has published several original articles in peer-reviewed journals a The Lancet, Blood, Journal of Thrombosis and Haemostasis, Haematologica, Thrombosis and Haemostasis, British Journal of Haematology and Haemophilia. She is reviewer for several peer-reviewed journals and member of the Editorial Board of JTH. She is a member of several scientific societies (ISTH, WFH, ASH, EAHAD, SISET, AICE) and was a medical member of the Inhibitor Working Group of the European Hemophilia Consortium. She is co-chair of the ADVANCE Study Group. She has acted also as co-chair of the Scientific and Standardization Subcommittee of ISTH on FVIII, FIX and rare bleeding disorders. She has been involved as principal and co-investigator in several clinical trials, and she takes care of both children and adults with hemophilia and other congenital bleeding disorders with a specific scientific interest in novel therapies, prophylaxis, inhibitors, and chronic hepatitis C.
As a patient with factor II deficiency, the diagnostic and treatment of rare bleeding disorders is a matter dear to my heart. My motivation to participate in the work of the ERIN committee is to improve both diagnostic and treatment for patients with rare bleeding disorders across Europe.
Economist and financial expert by profession, executive coach and trainer by passion and haemophilia advocate by every drop of my blood through my son (who has severe haemophilia A with inhibitors). Bringing a good decade of practical experience from the corporate insurance world, laser focus, growth mindset and resilience from my own experience, offering you anything I can just do, in hope that together we can make life more fulfilled for those impacted by bleeding disorders.
Amy Owen-Wyard is a Registered Mental Health Nurse. With experience working with children, young people, their families and adults with severe and enduring mental health conditions. Amy was also involved in a service improvement to provide a holistic care approach for those in general hospitals to support both their mental and physical health, whilst sharing her expertise and knowledge in mental health with the wider multidisciplinary team.
